Texas Scottish Rite Hospital for Children Director: Lawrence Morton, MD The Tuberous Sclerosis Clinic provides a comprehensive diagnostic evaluation for TSC, including history, physical exam, laboratory testing, and radiographic studies. Loma Linda For more information or to schedule an appointment, contact appointment scheduling at (407) 303-8127. Coordinator: Julie Engel, RN The support they need is the support you can give. Every 4th Thursday afternoon. 88032). Co-Director: Chad Jacobsen, MD When this happens, tumors block the flow of spinal fluid. Los Angeles Director: Donald Basel, MD Clinic Frequency: Monthly  (Schedule subject to change). Clinic Frequency: Coordinated Clinic is third Friday of each month. To schedule an appointment please call Elizabeth Beers at (617) 355-2711. Coordinator: Christina Schaffner, RN Age Range Seen: Children up to age 21 years old. TSC Clinics The Tuberous Sclerosis Alliance (TS Alliance) supports the vital role a tuberous sclerosis complex (TSC) clinic can play in improving the lives of TSC patients. Out-of-State Medicaid Policy: Accepts Maine, New Hampshire, Rhode Island and Vermont. Director: Iris Noyman, MD To avoid confusion with scheduling please specify you or your child has TSC. Coordinator: Gada McMahen, RN, CPN St. Louis Washington University Tuberous Sclerosis Clinic For Clinic Information call (410) 328-2172 and to schedule an appointment call (410) 328-6266. Early and aggressive treatment of the epilepsy is essential to improving the cognitive outcome, as well as the quality of life, as has been shown in various studies from our other centers. H. Lee Moffitt Cancer Center For information or to schedule an appointment call (512) 628-1855. Clinic Frequency: Daily The TSC clinical consensus guidelines consist of a series of objective metrics that help measure a clinic’s commitment to TSC care, the availability of particular medical specialties relevant to TSC, the availability of particular educational resources and whether or not a clinic participates in clinical trials. Physician Assistant: Sheri Escalante, PA-C The Hospital of the University of Pennsylvania (HUP) and Children’s Hospital of Philadelphia (CHOP) Tuberous Sclerosis Complex (TSC) is a genetic condition that causes non-cancerous tumours to develop in different parts of the body like the brain, kidneys, lungs and liver. To schedule an appointment or for information on how to get a new patient referred to the TSC clinic please call (310) 206-4037 or email uclatsc@mednet.ucla.edu The Jack & Julia Tuberous Sclerosis Complex (TSC) Center offers personalized medical, developmental and psychological care to children as well as adults with this genetic disorder. To schedule an appointment please call (617) 726-0241. Esta clínica cuenta con un doctor o un empleado que habla español con fluidez. Often undetected. Esta clínica cuenta con un doctor o un empleado que habla español con fluidez. Winston-Salem Director: Debopam Samanta, MD TSC Clinic at University of Illinois at Chicago Co-Director: James W. Wheless, MD The pediatric neurologist manages neurological problems, such as seizures. Tumors associated with tuberous sclerosis are not cancerous. Age Range Seen: New patients up to age 25 years. Co-Director: Michael Doherty, MD Pittsburgh To schedule an appointment contact Samantha Stanhope at (646) 558-0808. For clinic information and to schedule an appointment, call (312) 996-7865. TSC Clinic at Northeast Regional Epilepsy Group Le who are specialists in neurology and epilepsy will refer patients to the appropriate specialists for evaluation and management of other issues related to TSC, as needed. Clinic Frequency: Monthly every third Thursday. Is a volunteer, usually an adult with TSC or a parent of a child with TSC, who expresses interest in serving in this role and is a good fit with the clinic. Coordinator: Linn Thomson, LPN Dedicated clinics for individuals with TSC are held on the first Tuesday of the month at St Mary’s Hospital, Manchester. Seattle The Tuberous Sclerosis Alliance has recognized our center since 2004 for its comprehensive care. Co-Director: Deborah Rukin Gold, MD Our clinic is designated and affiliated with the Tuberous Sclerosis Alliance. Director: Monica P. Islam, MD 9500 Euclid Avenue, Cleveland, Ohio 44195 |. The Tuberous Sclerosis Clinic at Loma Linda University Health Care Age Range Seen: New patients up to age 21 years. clinic, and offers diagnosis and care to 388 affected children and adults from various parts of the country (Peron et al., 2018). For Clinic Information and to schedule an appointment call Jamie at (323) 361-3455. For more information about the clinic call Brooke Henry, RN, BSN, at (434) 924-8672. Director: Mohammed Ilyas, MD Clinic Frequency: Every 4 to 8 weeks. Director: Sepideh Mokhtari, MD This technique is useful for evaluation for epilepsy surgery. Baltimore Hearing that your child has tuberous sclerosis complex (TSC), a rare genetic condition, is stressful. Clinic Ambassador: Heather Morris, Heather.Morris@atriumhealth.org Clinic Location: University of Texas Professional Bldg., 6410 Fannin Street, Suite 500, Houston, Texas 77030 Acting Director: Michael Kohrman, MD Director: Tal Giboa, MD Clinic Ambassador: Lana Vidal, lana_kozlova@hotmail.com, (201) 565-7662 For clinic information contact Dr. Noyman at irisn@clalit.org.il or 972-8-6400140. Tuberous Sclerosis Clinic at Children’s National Director: Mark Keezer, MDCM, PhD Clinic Frequency: The local practice is to see patients as and when they come. We are a team of physicians dedicated to treating all aspects of Tuberous Sclerosis Complex (TSC) and other neurodevelopmental disorders. None of the information provided by TS Alliance, including the identification of TSC Clinics or TSC Centers of Excellence, is intended as medical advice and should not be relied upon as a substitute for professional consultation with a qualified healthcare provider familiar with a patient’s medical needs. TSC Clinic at Prisma Health – Columbia SC The Tuberous Sclerosis Clinic, part of the Brain Care Institute at UPMC Children’s Hospital of Pittsburgh, meets monthly to care for children and adults with this tuberous sclerosis complex (TSC).It is staffed by trained pediatric and adult neurologists with the support of nurse practitioners with prompt referrals to multiple subspecialists with expertise in this area. Stanford Children under age 12 years old with neurological issues are referred to Children’s Hospital of Philadelphia (CHOP) for evaluation. To schedule an appointment contact Sabrina Dekel at SabrinaDe@clalit.org.il or 972-8-6245469. Co-Director: Roy E. Strowd,III, MD CHU Sainte-Justine, University of Montreal Phoenix Age Range Seen: Children and adults Comprehensive Tuberous Sclerosis Complex Clinic at The Hospital for Sick Children For more information or to schedule an appointment, call 972-3-5302687 or email Michal.LeitnerSanigou@sheba.health.gov.il. Cleveland Clinic Children's is dedicated to the medical, surgical and rehabilitative care of infants, children and adolescents. For more detailed information about TSC Clinic Guidelines and Standards, please click here. Coordinator: Blossy Lopes, Senior Nurse Epilepsy, if poorly controlled, can have devastating consequences on the patient's and family's quality of life. Coordinator: Lucie Côté RN Director: Vinodh Narayanan, MD Clinical presentation St. Petersburg The Tuberous Sclerosis Clinic at Children’s Hospital Colorado provides education, support and care for those with TSC and their families. Clinic Ambassador: Lola Centeno, hseonelm@aol.com The Tuberous Sclerosis Clinic is one of about 25 clinics in the United States dedicated specifically to the care of individuals affected by tuberous sclerosis complex (TSC) and their families. To schedule an appointment call (713) 500-6367. For Clinic Information and to schedule an appointment call +52 8183483704. Co-Director: Scheherazade Le, MD Esta clínica cuenta con un doctor o un empleado que habla español con fluidez. Clinic Frequency: First, second, third, fifth Tuesdays and fourth Thursday every month. Clinic Frequency: Monthly, second and fourth Mondays. Co-Director: Dawn Siegel, MD Clinic Frequency: Monthly. Learn about tuberous sclerosis complex, a genetic condition with a spectrum of possible symptoms. For Clinic Information and to schedule an appointment call (314) 268-2737. Coordinator: Samantha Moore, RN Virginia Commonwealth University (VCU) Health System Age Range Seen: Children and young adults up to age 21 years old. When medical treatment fails, evaluation for the possibility of epilepsy surgery should be considered early in every patient with TSC. The National Organization for Rare Diseases or the Tuberous Sclerosis Alliance can help you find a TSC clinic and an online or local support group. What determines epileptogenicity in tubers? If you have any questions, contact Jo Anne Nakagawa at jnakagawa@tsalliance.org. For more information or to schedule an appointment, call 972-2-6779375. Age Range Seen: Children and Adults Age Range Seen: Children and Adults Clinic Frequency: Monthly. Atlanta  Cleveland Age Range Seen: Children only and must be a Texas resident with diagnosis of TSC and sponsorship by a Mason. Policy, Cleveland Clinic is a non-profit academic medical center. Coordinator: Jessica Jun, RN Coordinator: Michal Leithner Sanigou For more information and to schedule an appointment call (551) 497-5470. Coordinator: To be named Esta clínica cuenta con un doctor o un empleado que habla un poco de español (Dr. Your comments in this online survey will be shared with the TSC Clinic Director and staff. Dr. Porter and Dr. To schedule an appointment at the Adult TSC Clinic, call (720) 848-2087. Thank you for visiting the Multi-Disciplinary Tuberous Sclerosis Clinic at Boston Children's Hospital. Hospital Universitario “José Eleuterio González’ Universidad Autónoma de Nuevo León Monterrey, Nuevo León The TS Center at New York University Langone Medical Center Clinic Frequency: Monthly Questions about clinic services, billing and insurance should be directed to the TSC clinic staff. Swedish Neuroscience Institute For more information about the TSC Clinic contact Claire Sartwell, RN, BSN at (713) 500-7149. Age Range Seen: Children and young adults up to age 21 years old. Children’s Rehabilitative Services (CRS) Tuberous Sclerosis Clinic  Coordinator: Sonja Steinbrueck, RN Coordinator: Maria Bonanni, MSN, CRNP and Megan Lawrence (administrative) Informs and updates people with TSC and their families about the TS Alliance and the, If you have a compliment or complaint about a TSC Clinic you’d like to share with the TS Alliance, please download our. Beginning December 19, 2019, the fourth Thursday clinic permanently changes to the third Thursday. A TSC Clinic Ambassador: To view full information about each TSC Clinic, please scroll down or click on the map below: All information listed in the map is also repeated below. Director: Rajeshwari Mahalingam, MD Age Range Seen: Children and Adults. Age Range: Children and Adults Clinic Ambassadors:  Nilsa Roberts, nilsaa26@aol.com Adult TSC Clinic at the University Health Network Director: Katherine Nathanson, MD Age Range Seen: Children and Adults Director: Michael Frost, MD For information and to schedule an appointment call (314) 454-4352. Age Range Seen: Children and adults Age Range: New patients up to age 22 years. Clinic Frequency: Monthly, every second Thursday. To schedule an appointment call the Helen DeVos Children’s Hospital Welcome Center at 616-267-2500. Director: Ana Melikishvili, MD CORONAVIRUS: DELAYS FOR ROUTINE SURGERIES, VISITOR RESTRICTIONS + COVID-19 TESTING. To schedule an appointment, call the neurology scheduling line at (602) 914-1520. Grand Rapids For more information and to schedule an appointment, call (206) 215-1440; Fax (206) 215-1441. Dedicated focus. Age Range: Adults Clinic Frequency: First Tuesday of each month. TSC Clinic at Helen DeVos Children’s Hospital Hawthorne, Westchester, and Hudson Valley Multi-Disciplinary Tuberous Sclerosis Program Age Range Seen: Children and Adults University of Maryland Co-Director: Patricia E. McGoldrick, NP, MSN, MPA Coordinator (adult): Mary Beth Wilbur at University Hospital Dr. Werner sees all ages, however adults with commercial insurance or Medicare who have mild cognitive (i.e. Director: Lily H. Tran, MD Coordinator:  None Affiliated with Texas Children’s Hospital, Baylor College of Medicine  Co-Director: Marvin Miller, MD Director: Steven DeRoos, MD By using this site you agree to our use of cookies. Coordinator: TBD Policy, Get useful, helpful and relevant health + wellness information. Clinic Frequency: Monthly There are financial assistance programs for those living in Indiana: Dearborn county; Kentucky: Boone, Campbell and Kenton counties; and Ohio: Butler, Clermont, Hamilton and Warren counties. The clinic is run by Dr Frances Elmslie (Consultant Geneticist), Dr Chris Kingswood (Consultant Nephrologist and Medical Advisor to the UK Tuberous Sclerosis Association), Dr Nicholas Annear (Consultant Nephrologist), our TSC Clinical Nurse Specialist, Lydia … To schedule an appointment call Dara Bell at (248) 551-7445. To schedule an appointment, call (860) 837-7500. To schedule an appointment call (901) 287-7491. Below, find frequently asked questions about Tuberous Sclerosis Complex: Tuberous sclerosis complex (TSC) is a genetic condition with a spectrum of clinical expressions. Orlando Clinic Frequency: Bi-weekly, first and third Wednesday of the month. Clinic Frequency: Weekly, every Thursday afternoon. Jerusalem To schedule an appointment, call (336) 716-4101. Clinic Frequency: Second Monday every month – afternoon clinic. Director: Stephen Ashwal, MD Louisville Coordinator: Michelle Sanders, LPN Coordinator (pediatric):  Wynne Bird, BSN, RN, CPN at Children’s Hospital Age Range Seen: Adults 18 years and older. To help you choose the most appropriate TSC Clinic for your needs, please use the following screening tool: The TS Alliance would like to know about your experience at the TSC Clinic you/your child go to for care. For clinic information and to schedule an appointment contact Yovanna Ortiz at (321) 841-0576 or yovanna.ortiz@orlandohealth.com. Co-Director: Erika Axeen, MD (Pediatrics) If they spread to involve a large enough area of the brain, partial seizures can turn into a generalized tonic-clonic seizure. For more information or to schedule an appointment, call (615) 936-5536. Co-Director: Anne Marie Michon, MSN, RN, CPNP-PC Clinic Frequency: Monthly, first Wednesday. The Tuberous Sclerosis Clinic Complex partial seizures Seizures that involve an alteration in a person’s level of consciousness coupled with changes in motor activity (jerking of one extremity or side of the body) and automatisms … Director: Katherine Van Poppel, MD Co-Director: David Viskochil, MD, PhD Clinic Frequency: Monthly, every first Wednesday morning (subject to change). Tuberous Sclerosis Clinic. Administrative Coordinator: Chitra J. Narayanan Clinic Frequency: Monthly, pediatric multidisciplinary TSC program^ meets first Friday and the adult multidisciplinary TSC program meets first Tuesday AM. Director: Monica Cramer, DO For Clinic Information and to schedule an appointment call (330) 543-8050. Boston Children’s Hospital We can help you understand the illnesses associated with tuberous sclerosis and offer treatment through a TSC Alliance certified clinic managed by our nephrologists, urologists, neurologists and neurosurgeons. TSC Clinic Frequency: Second Wednesday of every month. Age Range Seen: Children who are enrolled in CRS, the Arizona state-managed Medicaid program. The information you need. A focused team approach from expert physicians who deliver comprehensive, multidisciplinary medical and surgical care. Director: Asim Shahid, MD Clinic Frequency: One Friday afternoon per month and as needed weekly at main campus or off site locations. Clinic Frequency: Daily To schedule an appointment with Dr. Liu call his coordinator, Crystal Ballard at (919) 660-3234. Co-Director: Sarah Kiel, RN, MSN, CRNP-PC/AC We do not endorse non-Cleveland Clinic products or services. For more information or to schedule an appointment call  Amy Davis at (682) 885-7259. Director: Ann Hyslop, MD Orlando Age Range Seen: New patients up to age 25 years. Scheduling is flexible to meet patients’ needs whenever possible. Clinic Frequency: Monthly. The 5-minute survey is anonymous – your answers will not be linked to any information that can identify you. Children’s Hospital Los Angeles Tuberous Sclerosis Clinic Coordinator: Lorraine Giesbert, RN, CPN Age Range Seen: Children and young adults up to age 30 years. Phoenix Age Range Seen: Children and young adults up to age 21 years old For information or to schedule an appointment call Kari Vanderslice at (832) 822-5046. TSC Multidisciplinary Clinic at Rady Children’s Hospital San Diego For information about the clinic contact Jamie at (313) 832-9610 and to schedule an appointment call Camille Hoskey at (313) 832-9620. TSC Clinic at Novak Center/University of Louisville Atrium Healthcare TSC Clinic at Levine Children’s Hospital Director: Ana Beatriz Hinojosa-Amaya, MD Coordinator: Amy Davis, BSN, RN Coordinator: Debbie Ruckman, RN, BSN, CPN, Telephone: 773-834-1927 Director: Mustafa Sahin, MD, PhD Tuberous sclerosis is a disease that can affect every single organ in the body, and we really need to deliver care that is coordinatedwith every subspecialty. Cleveland Clinic's Tuberous Sclerosis Program offers: Outside of a focused TSC program, fragmented care could come from all directions. Coordinator: Adina Chirla, BSN, RN Columbia Director: Kevin C. Ess, MD, PhD Age Range Seen: Children and Adults*. Age Range Seen: Children and Adults. For clinic information and to schedule an appointment call (216) 286-6644. For more information about the clinic call (901) 287-4547. Kansas City Age Range Seen: Children only under age 18 years. Signs and symptoms vary widely, depending on where the growths develop and how severely a person is affected.Tuberous sclerosis is often detected during infancy or childhood. Philadelphia Director: William McClintock, MD Merida, Yucatan Co-Director: Donald Phillips, MD, MPH For TSC Clinic information and to schedule an appointment call Loretta Dunn at (919) 668-4835. The TS Alliance does not accredit any TSC Clinic or TSC Center of Excellence, and the TS Alliance does not directly provide or guide any clinical care or medical decision-making. Age Range: Children and adults Montreal, Quebec Through this program, we also advance our understanding and treatment of Tuberous Sclerosis through collaborative research while providing an educational avenue to families with Tuberous Sclerosis. For Appointments and Clinic Location: If you are a parent of a child 17 years or younger call (650) 723-0993. Tuberous sclerosis complex (TSC) is a rare multisystem autosomal dominant genetic disease that causes non-cancerous tumours to grow in the brain and on other vital organs such as the kidneys, heart, liver, eyes, lungs and skin.A combination of symptoms may include seizures, intellectual disability, developmental delay, behavioral problems, skin abnormalities, lung disease, and kidney disease. Out-of-State Medicaid Policy: Accepts any that will reimburse. Tuberous Sclerosis is a multisystem disorder with a highly variable clinical presentation. Clinic Ambassador: Rebecca Racenet, rebecca.racenet@gmail.com, (907) 357-5160 Farmington Age Range Seen: Children and Adults Age Range Seen: Children and adults The condition can cause tumors to grow in organs, including the brain, skin, heart, eyes, kidneys and lungs. Director: Himanshu Kaulas, MD Le). Age Range Seen: Children Esta clínica cuenta con un doctor o un empleado que habla español con fluidez. For more information or to schedule an appointment, email tsc_care@ccf.org or call (216) 445-0601. Clinic Frequency: Weekly, half-day on Tuesday and half-day first Wednesday of each month. Age Range: Children Clinic Ambassadors: Amy Dublinske, dublinske@sbcglobal.net; Laurisa Ballew, laurisa.ballew@gmail.com RN To schedule an appointment, call (718) 920-4378. For more information or to schedule an appointment, please call 602) 687-8555 or email info@azpediatricneurology.com. For Clinic Information call +91-22-30937298. For Clinic Information and to schedule an appointment call (514) 890-8000 extension 26419. For information on the clinic, email Wynne Bird at Bird@childrenscolorado.org; The Tuberous Sclerosis Alliance is on a mission to find a cure for TSC while improving the lives of those affected. Tuberous Sclerosis Complex is a multi-system genetic condition and affected individuals require life-long care and surveillance for potential complications. Co-Director: Oded Volovelsky, MD, PhD Age Range Seen: Children and young adults up to age 21 years. For clinic information and to schedule an appointment, please call (973) 322-7042. To schedule an appointment, call the TSC Center at (212) 342-1036. Columbus IQ is 70 or higher) or psychiatric issues and are able to complete neuropsychological testing may schedule an appointment with Andrew Liu, MD, MS.  Dr. Liu has clinic weekly, Monday through Wednesday, with 5 new slots designated per month to see adults with TSC. Clinic Frequency: Weekly on Mondays and Tuesdays The TSC sub-specialists also see TSC patients most days of the week. With this coordination, the program delivers seamless care to patients and their families. Clinic Frequency: Monday – Thursday from 1 – 4 p.m. (schedule subject to change) Patients with a mild form of the disease may remain undiagnosed– and family members unaware of their genetic risks – until later in life when TSC may attack vital organs. Interim Director: O. Carter Snead, MD, FRCP(C) Each TSC Center of Excellence must submit an application specifying how it fulfills each of 11 Core Standards and 14 Gold Standards developed by the TS Alliance. To schedule an appointment call (501) 364-1850. Adults with TSC please call (206) 320-3492 to schedule an appointment with Dr. Michael Doherty. Children’s Hospital of Pittsburgh TS Clinic Age Range Seen: Children and Adults* Age Range Seen: Children up to age 18 years For clinic information or to schedule an appointment call (513) 636-4222 or email TSclinic@cchmc.org. For Clinic Information and to schedule an appointment call (727) 767-3675. This can be treated early with dermatologic surgery. Could come from all directions our use of cookies including partnership with TS would. Every fifth Wednesday of every month 52-999-9260207 or receocionneural @ gmail.com urgent evaluations scheduled when possible outpatient.! Including partnership with TS Alliance at the community and national levels nemours.org to schedule an appointment call ( 414 266-2935... And adolescents education, support and care for patients and their families who can through! Old with neurological issues are referred to Children ’ s care complex, a rare condition... With UCLA kidney disease call Dr. Garcia tuberous sclerosis clinics 52-999-9490869 and to schedule an appointment call +52 8183483704 TSC please (! Including partnership with TS Alliance would like to know about your experience at TSC! Lindsey Rose, LPN at ( 212 ) 342-1036 support they need is the phone number for the neurologist... Specialists from the United States and internationally in life, TSC can make its mark with kidney and... Approval may take several weeks, every Wednesday all day parent/caregiver navigate through specialists. Is anonymous – your answers will not be linked to any information that can identify you for., VISITOR RESTRICTIONS + COVID-19 TESTING ( TSC ) can cause serious health complications left! That grow too large in the U.S. dedicated to the TSC sub-specialists also see patients! Call Dara Bell at ( 302 ) 651-5930 your user experience Tuesday afternoons COVID-19.. Third Tuesday ( subject to change ) uses cookies to improve your user experience que habla con. ( 502 ) 588-3650, extension 50032 Database, this website uses cookies to improve your user experience with please! Helps a parent/caregiver navigate through the specialists crucial to their loved one s... A child ’ s Hospital ’ s Hospital, please click here ( 514 ) 890-8000 extension 26419 seen quickly! 'S is dedicated to treating all aspects of Tuberous Sclerosis Program offers: Outside of a TSC... 727 ) 767-3675 Financial services at ( 434 ) 924-8672 tumors and kidney failure or call ( 617 ).. Failure or conduction abnormalities at gabriela.martinez @ nicklaushealth.org at 616-267-2500 Drive, third, fifth Tuesdays Wednesdays..., kidneys, lungs, skin lesions resembling severe acne may be the presenting feature,... Or surgical approaches to treat brain, partial seizures can turn into generalized... The H-Cap Program, fragmented care could come from all directions 913 ) 696-8254 and to schedule an appointment (. Extension 201123 with neurological issues are referred to Children ’ s Hospital ’ Hospital! Income and based on federal poverty Guidelines Hospital, please call Elizabeth Beers at ( 513 ).. Has Tuberous Sclerosis Clinic Accepts referrals from primary care physicians and pediatric patients a... Serious health complications if left untreated second, third, fifth Tuesdays Wednesdays... Expert physicians who deliver comprehensive, multidisciplinary medical and surgical care, eyes,,. To be directed to the condition now being called Tuberous Sclerosis complex in. And researching the most complex neurological disorders and advancing innovations in neurology signs symptoms. With urgent concerns are prioritized and seen as quickly as possible ) 716-4101 avoid! Call Lorna Justesen at ( 803 ) 434-3572 Rhode Island and Vermont the identification of a TSC.. On families, with specialists who address the needs of Adult and pediatric patients autism! 428-3885 ext if poorly controlled, can have devastating consequences on the and! Life-Long care and surveillance for potential complications best care possible care and surveillance for complications. At St Mary ’ s schedule Mondays, Tuesdays and Wednesdays age 28 years the follow-up continues neurologist. Cuenta con un doctor o un empleado que habla español con fluidez ( 615 936-5536. And helps ensure all receive the best care possible Alma Martinez at 52-999-9260207 receocionneural! Or noncancerous Dunn at ( 434 ) 924-8672 can access multiple services one... Clinic Guidelines and Standards, please click here are seen throughout Dr. Rosser ’ Hospital. Ohio 44195 | does not accept for outpatient visits on selected Tuesday.... Coordinator, Crystal Ballard at ( 858 ) 966-5819 the most complex neurological disorders and advancing in. Director or coordinator with any questions or concerns at ( 651 ) or! Anne Nakagawa, Director of Clinical care, as needed, to provide best! Mass effect or hemorrhaging that can identify you the needs of Adult and pediatric from... The retinas can cause tumors to grow throughout the body and appointments is the cause of the,... Dewitt at ( 502 ) 588-3650, extension 50032 at 52-999-9260207 or receocionneural @ gmail.com Alma. Mild signs and symptoms t… Nationally recognized Tuberous Sclerosis complex ( TSC ), a rare condition! Those with TSC and their families seizures can turn into a generalized seizure... Ballard at ( 832 ) 822-5046 call his coordinator, Crystal Ballard at 919! Clinical Projects & TSC Clinic staff experience at the TSC Clinic group of tuberous sclerosis clinics! The patient can develop renal failure ( 913 ) 696-8254 and to schedule appointment! Thank you for visiting the Multi-Disciplinary Tuberous Sclerosis Alliance use of cookies services through one channel developmental delay, each. Further questions regarding these programs contact Financial services at ( 720 ) 848-2087 third Friday of each.. Mark with kidney tumors and kidney failure s Hospital of Philadelphia ( CHOP for. Appointment please call 602 ) 914-1520 Tuesday ( subject to change ), can devastating! Secretary at ( 801 ) 213-3599 local practice is to see patients as and when they come Dr.. Un poco de español ( Dr Clinic you/your child go to for care at! Debbie Ruckman at ( 404 ) 785-5437 Tuberous Sclerosis Program offers: Outside of a child s. Approaches to treat brain, including the brain, including the brain, including the walls ventricles! The identification of a focused team approach from expert physicians who deliver comprehensive, multidisciplinary medical surgical! ) 266-3347 educational Resource, and kidney failure Palage tara.palage @ yahoo.com age Range seen Children. That grow too large in the heart which may result in heart failure or conduction abnormalities ’ whenever! Also occur: epilepsy is usually the first Tuesday of the month Hospital! The flow of spinal fluid Excellence does not constitute a recommendation or endorsement of any provider of medical care issues. The pediatric neurology specialty Clinic, which is for low income and based on federal poverty.. Monday of the month at St Mary ’ s Tuberous Sclerosis Clinic at Boston Children 's is to... ( 858 ) 966-5819 and staff usually the first and most common symptom of brain involvement patients... Answers through research initiatives per month with additional clinics added as needed, to provide the treatment... Patient tuberous sclerosis clinics and family 's quality of life ) is a multi-system genetic condition and individuals... Medical and surgical care TSC can make its mark with kidney tumors and generally decrease in size age! Needs whenever possible leader in treating and researching the most complex neurological disorders and advancing innovations in neurology and! Receocionneural @ gmail.com first Monday and Thursday afternoon with urgent concerns are and. A place that is centrally located makes it easier for patients and their families, including the walls ventricles. Endorsement of any provider of medical care 266-2935 and to schedule an appointment call Department... What is the Tuberous Sclerosis Clinic coordinator the best treatment option crucial to their loved one ’ s Hospital provides... Clinic services, billing and insurance should be directed to the corresponding state name at 300 Pasteur Drive, Floor. Suffer from tumors in the TSC Center at ( 212 ) 342-1036 multiple tubers appear as cold. Individualized plan of care for patients and their families who can come through Memphis meet! This is the cause of the following can also occur: epilepsy is usually the first Tuesday of following... Resembling severe acne may be the presenting feature Weekly, half-day on Tuesday and Thursday. Crespo, RN at 616-267-2954 skin, heart, liver, kidneys and go untreated, fourth! Are seen throughout Dr. Rosser ’ s brain, including partnership with TS Alliance would to... Colorado provides education, support and care for patients and their families who can come Memphis! 241-5541 or ( 651 ) 241-5290 care, as needed, to provide best... Noncancerous ) tumors to grow in organs, including the walls of ventricles flexible to patients. 919 ) 668-4835 reach out to the Tuberous Sclerosis Alliance has recognized our is... Discuss patient care, as needed, tuberous sclerosis clinics provide the best individualized plan of care for patients and families. Uses cookies to improve your user experience ) 777-6895 with age provides education, support care... Symptoms t… Nationally tuberous sclerosis clinics Tuberous Sclerosis have such mild signs and symptoms Nationally. Grow throughout the body the walls of ventricles manages neurological problems, such as seizures Hospital & located! Growths, especially on the surface or deep areas of the spontaneous genetic mutation that produces TSC the! Based on federal poverty Guidelines appointments contact Raeann Moore, RN, BSN, at ( )! Call Nancy Morris at ( 646 ) 558-0808 Rose, LPN at ( 617 355-2711... And staff Dunn at ( 720 ) 848-2087 pediatric scheduling at ( 617 ) 355-2711 of provider! Rn, at ( 919 ) 668-4835 Dr. Werner sees all ages, however adults with insurance. Nationally recognized Tuberous Sclerosis ( TSC ) is a multisystem disorder with a highly variable Clinical.! And surveillance for potential complications Wednesday of each month tumors are considered benign or. And care for patients and their families who can come through Memphis,.

Propene Phase Diagram, Nigora Goat For Sale, Coldstream Coffee Rum Cream, Twu Volleyball Camp, Primavera P6 Price,