There is a personal budget type payment option, though I don’t know the ins and outs of it as mum didn’t qualify for some reason I can’t recall, maybe worth looking into https://www.nhs.uk/NHSEngland/patient-choice/personal-health-budget/Pages/about-phb.aspx Our authority used various agencies once Continuing Healthcare (CHC) was awarded. collecting prescriptions or your pension. It means the person needing care may be left vulnerable and without essential care. If you’re faced with a situation where the NHS is not providing enough care through NHS Continuing Healthcare at home – and where the care provision does not meet all the assessed care needs – here’s one thing you could do: Write to the Head of Adult Safeguarding (usually based within the local authority). Hi. And we deal with all of her appointments etc, just for example we had 17 contacts with the gp in 14 weeks because of her ill health. Don’t be surprised if you meet resistance from the CCG, who may consider it ‘more expensive’ to provide care at home. they have a Primary Health Need. A carer can visit you at home to help you with all kinds of things including: getting out of bed in the morning. The Social Worker advised that his needs are now more health than social care (which I do agree with) and therefore I should seek a re-assessment from his GP and the Community nurses. What the nurse should have done was get the CHC assessment process in motion while your father was still in hospital. We have recently been looking at chc direct payments. remembering to take your medicines. I’ve mentioned this to the CHC assessor but he doesn’t seem that interested. We do not have lasting power of attorney. Thank you Angela I will look through this , your site has helped so much . However, there are three vital points to keep in mind here: 1) It is only a joint funding package if the paperwork says it’s a joint finding package;. No matter where the care is provided, NHS Continuing Healthcare must cover ALL assessed care needs; there’s no cap on NHS care in this respect. So if the current visits are not enough, this is potentially neglect by the CHC/CCG. His right side was effected, hard to communicate cannot use his right side but slowly through our help (the family) he’s moving his fingers, hand, leg, toes, feet and speaking at times putting sentences together but they say he’s unresponsive he also has chronic fagiue he does have bad days I agree but not all the time, he is also double incontinent but lately at times will ask for the loo. I am really struggling to get a straightforward answer to what should be a simple question so figured you may be able to help. One of the questions from the CHC team was had I considered that I might need to apply to the court of justice for a “deprivation of liberty order” due to my mum having 24hr supervision. CHC have now stated that she will have to be cared for in a nursing home which is due to costs not safety ! Next review due: 20 June 2021, what you can expect from end of life care, caring for someone with a terminal illness, Caring for someone with advanced cancer (PDF, 1.22Mb), videos and written interviews of people talking about their experiences of end of life care at home, provide or arrange hands-on nursing or personal care, if you need it, provide practical and emotional support for you and your carers at home. Is it correct that mum had to pay 60 percent or should CHC pay all her care? He is 94 so time is somewhat limited, though he is not on end of life care at this point. I need to know if this information is correct in view of CHC not supposedly being means tested and after reading the report of the Coughlan case? Where do I go next to get through or get this sorted? washing and dressing. 24 hour care at home is a good idea because it generally costs less, is less stressful for your loved one, and the care is specialised to your loved one's individual needs. They have said they feel he will qualify for Continuing Healthcare the highest but the assessment wil take place in a home as they don’t do it the hospital and it will be better him going into a home as the assessment will be done quicker than if we bring him home; we really want him home but they also said that he’s needs 24 hour care 2 carers at all times and even with chc at home he will only get 4 calls a day. SALT said mum does not have understanding or capacity which is wrong as she understands us and is very clear she does not want to go into a nursing home. 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